Find a child neurologist. (See Resources) It will be helpful if you can record your child’s seizure activity with a video recorder to show the child neurologist. It is often hard to describe seizure types, an epileptologist can most accurately determine what type of seizure your child is having is through a video EEG in an epilepsy […]
News - Part 189
My Child Has Epilepsy – What Next?
Pharmacology for Epilepsy Patients
General Principles of Pharmacology for Epilepsy Patients and Their Caregivers Summary I recently attended a workshop for parents of children with epilepsy designed to gather opinions about the launch of an educational website. During the workshop, the following question was raised to this small group, “What information do you need from health-care providers to better […]
Sudden Unexpected Death in Epilepsy
(Sudden Unexplained Death in Epilepsy) What is sudden unexpected death in epilepsy (SUDEP)? The definition of SUDEP is “sudden, unexpected, witnessed or unwitnessed, non-traumatic and non-drowning death in epilepsy, with or without evidence for a seizure and excluding documented status epilepticus, in which postmortem examination does not show toxicological or anatomical cause for death.” The […]
Comorbidities of Intractable Childhood Epilepsy
Intractable Epilepsy: The Invisible Disability W. McIntyre Burnham Intractable epilepsy as a disability Epilepsy is sometimes called the “invisible disability”. Is this a reasonable assessment? If one thinks in terms of people with drug-responsive seizures, the term “disability” is probably too strong. These people usually lead normal lives, and reach their full potential for accomplishment. […]
Child Neurology: Dravet Syndrome
Child Neurology:Dravet syndrome When to suspect the diagnosis Hollie Robinson, MD Alex Goodwin, MD, PhD Tom Davis, MD George Walton, Jr., MD ABSTRACT Dravet syndrome (DS), previously known as severe myoclonic epilepsy in infancy (SMEI), is an epileptic encephalopathy that presents with prolonged seizures in the first year of life. The seizures often occur with […]
US Drug Approval Process
How much time and money does it take to bring a drug to market in the United States? According to FDA estimates, it takes an average of 8 ½ to 17 years, from drug conception to marketing, before a drug is finally FDA approved for use in the general patient population. An article published in […]
Dravet syndrome International Patient Registry
Solving the Puzzle of Intractable Childhood Epilepsy Syndromes Harriet Davies, PharmD Intractable Childhood Epilepsy Alliance Durango, CO 81301 Introduction: The genetic basis of pediatric epilepsy syndromes is receiving increasing attention as known seizure propagating gene mutations are identified and genetic testing is commercially available. Dravet syndrome, or severe myoclonic epilepsy of infancy (SMEI), is an […]
Adaptive Stroller Request Template Letter
This template letter for an adaptive stroller and adaptive car seat for your child may be useful if you are pursuing payment of these items by your insurance carrier. Aetna paid for the stroller but not the car seat. Aetna Appeals Resolution Team Re: Denial #_________ Patient: _________ DOB: _________ To Whom it May Concern: […]
US Drug Carbohydrate Content
US Brand and Generic Drugs and their Carbohydrate Content Below is a list of AEDs (brand and generic) compiled by Yatin Patel, Doctor of Pharmacy Candidate of Wingate School of Pharmacy, August 2010 while at ICE for a Drug Information Rotation. Dr. Harriet Davies has checked for accuracy of information. This list represents generics and […]
Ion Channel Epilepsies
The above link will automatically download A PDF file of a 36 page power point presentation created by Sofia Walton, Pharm D. Candidate, Wingate University reviewing Ion Channel Epilepsies into a new browser window or tab.