Category: Childhood Epilepsy

FDA Approves ONFI™ (clobazam)

FDA Approves ONFI™ (clobazam) for the Adjunctive Treatment of Seizures Associated with Lennox-Gastaut Syndrome in Patients Two Years and Older Approval based on largest clinical trial to date evaluating pediatric and adult patients with a current or prior diagnosis of LGS1,2 DEERFIELD, Ill.–(BUSINESS WIRE)–Lundbeck Inc. (“Lundbeck”), a wholly owned subsidiary of H. Lundbeck A/S in […]

Photosensitivity as a Seizure Trigger

Some non-moving patterns with high contrast may trigger seizures in some people with photosensitive epilepsy. Examples of high contrast patterns are black and white stripes, some patterned materials and wallpapers, and sunlight through slatted blinds. Polarized, blue lens sunglasses may help with photosensitivity. Ask your optician to find the deepest blue tint possible. The Z1 […]

Seizure Alert Dogs

As many studies have concluded, alert and assist dogs can be beneficial for people with epilepsy. Alert and assist dogs range from assisting a person in day to day life, alerting when a person has a seizure, to even prediction an upcoming seizure. Although it must be noted a dog cannot be trained to predict […]

New ICE Terminology from ILAE

Important Changes in Intractable Childhood Epilepsy Terminology – International League Against Epilepsy (ILAE)  The ILAE has recently updated their classification of the epilepsy syndromes.  The definitions they have listed on their website pertaining to “disease” and “syndrome” and “electro-clinical syndrome” are below:> Disease versus syndrome:  Although there is reason to distinguish the concepts of disease […]

My Child Has Epilepsy – What Next?

Find a child neurologist. (See Resources) It will be helpful if you can record your child’s seizure activity with a video recorder to show the child neurologist.  It is often hard to describe seizure types, an epileptologist can most accurately determine what type of seizure your child is having is through a video EEG in an epilepsy […]

Sudden Unexpected Death in Epilepsy

(Sudden Unexplained Death in Epilepsy) What is sudden unexpected death in epilepsy (SUDEP)? The definition of SUDEP is “sudden, unexpected, witnessed or unwitnessed, non-traumatic and non-drowning death in epilepsy, with or without evidence for a seizure and excluding documented status epilepticus, in which postmortem examination does not show toxicological or anatomical cause for death.”  The […]

Comorbidities of Intractable Childhood Epilepsy

Intractable Epilepsy: The Invisible Disability W. McIntyre Burnham Intractable epilepsy as a disability Epilepsy is sometimes called the “invisible disability”. Is this a reasonable assessment? If one thinks in terms of people with drug-responsive seizures, the term “disability” is probably too strong. These people usually lead normal lives, and reach their full potential for accomplishment. […]

Ion Channel Epilepsies

The above link will automatically download A PDF file of a 36 page power point presentation created by Sofia Walton, Pharm D. Candidate, Wingate University reviewing Ion Channel Epilepsies into a new browser window or tab.

Orthotics for Intractable Epilepsy

Orthotics and Shoe Inserts for Children with Intractable Epilepsy Families of children in early intervention programs and those who participate in physical therapy centers often have questions about the use of shoe inserts known as orthotics for their children. Although orthotics are mentioned in many books available to families and professionals, there are few magazine […]

PAME Conference

This 3-day learning event is the first Partners Against Mortality in Epilepsy (PAME) conference devoted predominantly to Sudden Unexpected Death In Epilepsy (SUDEP), where clinical, basic science and patient/family attendees will come together to understand and support each other. This is a joint effort of SUDEP Coalition partners (AES, CDC, CURE, EFA. ETP/FACES, NINDS, SUDEP […]