Category: Progress & Prognosis ep

FDA Approves ONFI™ (clobazam)

FDA Approves ONFI™ (clobazam) for the Adjunctive Treatment of Seizures Associated with Lennox-Gastaut Syndrome in Patients Two Years and Older Approval based on largest clinical trial to date evaluating pediatric and adult patients with a current or prior diagnosis of LGS1,2 DEERFIELD, Ill.–(BUSINESS WIRE)–Lundbeck Inc. (“Lundbeck”), a wholly owned subsidiary of H. Lundbeck A/S in […]

New ICE Terminology from ILAE

Important Changes in Intractable Childhood Epilepsy Terminology – International League Against Epilepsy (ILAE)  The ILAE has recently updated their classification of the epilepsy syndromes.  The definitions they have listed on their website pertaining to “disease” and “syndrome” and “electro-clinical syndrome” are below:> Disease versus syndrome:  Although there is reason to distinguish the concepts of disease […]

Sudden Unexpected Death in Epilepsy

(Sudden Unexplained Death in Epilepsy) What is sudden unexpected death in epilepsy (SUDEP)? The definition of SUDEP is “sudden, unexpected, witnessed or unwitnessed, non-traumatic and non-drowning death in epilepsy, with or without evidence for a seizure and excluding documented status epilepticus, in which postmortem examination does not show toxicological or anatomical cause for death.”  The […]

Comorbidities of Intractable Childhood Epilepsy

Intractable Epilepsy: The Invisible Disability W. McIntyre Burnham Intractable epilepsy as a disability Epilepsy is sometimes called the “invisible disability”. Is this a reasonable assessment? If one thinks in terms of people with drug-responsive seizures, the term “disability” is probably too strong. These people usually lead normal lives, and reach their full potential for accomplishment. […]

Orthotics for Intractable Epilepsy

Orthotics and Shoe Inserts for Children with Intractable Epilepsy Families of children in early intervention programs and those who participate in physical therapy centers often have questions about the use of shoe inserts known as orthotics for their children. Although orthotics are mentioned in many books available to families and professionals, there are few magazine […]