News - Part 3

What is Topamax (Topiramate)?

Topamax (Topiramate) is the antiepileptic medication of uncommon composition, being a fructose derivative. Topamax is not confirmed to be effective in manic or bipolar disorders treatment. Studies are also being conducted what Topiramate is used for: post-traumatic stress; alcoholism; overeating; headaches of various origins; neuropathy. This antiepileptic drug is also included in the list of […]

Obtaining Stiripentol in the United States

Harriet Davies, PharmD Stiripentol is not an FDA approved drug.  For the last several years, US citizens have been able to obtain stiripentol by ordering directly from Biocodex, France OR by ordering through Caligor Pharmacy, NY via the FDA’s Personal Importation Policy (PIP): http://www.fda.gov/forindustry/importprogram/importpolicyandinformationbyproduct/default.htm FDA’s PIP is discretionary, meaning the FDA has the right to […]

FDA Approves ONFI™ (clobazam)

FDA Approves ONFI™ (clobazam) for the Adjunctive Treatment of Seizures Associated with Lennox-Gastaut Syndrome in Patients Two Years and Older Approval based on largest clinical trial to date evaluating pediatric and adult patients with a current or prior diagnosis of LGS1,2 DEERFIELD, Ill.–(BUSINESS WIRE)–Lundbeck Inc. (“Lundbeck”), a wholly owned subsidiary of H. Lundbeck A/S in […]

ICE Statement

The Intractable Childhood Epilepsy Alliance is a non-profit 501c3 organization dedicated to improving lives of children affected by intractable epilepsy through evidence-based information, advocacy for appropriate medical treatment including compassionate use and Orphan drug products, promotion of drug development, data collection through patient registries, and funding of research that will lead to a cure for […]

Seizure Alert Dogs

As many studies have concluded, alert and assist dogs can be beneficial for people with epilepsy. Alert and assist dogs range from assisting a person in day to day life, alerting when a person has a seizure, to even prediction an upcoming seizure. Although it must be noted a dog cannot be trained to predict […]

Emergency Administration of Rescue Medications

Purpose: to assist each child at the time of a seizure and when/if rescue medication administration is needed. Objectives: Upon completion of the rescue medication training, the participant(s) will demonstrate and/or verbalize the following competencies: Have a basic understanding of seizures and the different types and characteristics of each How to manage seizures Read medication […]

Photosensitivity as a Seizure Trigger

Some non-moving patterns with high contrast may trigger seizures in some people with photosensitive epilepsy. Examples of high contrast patterns are black and white stripes, some patterned materials and wallpapers, and sunlight through slatted blinds. Polarized, blue lens sunglasses may help with photosensitivity. Ask your optician to find the deepest blue tint possible. The Z1 […]

Canadian Family Pharmacy: Low Prices and Favourable Terms

Canadian Family Pharmacy – a convenient online store of medications specializing in reference system for automated search for rare and common medications online. Using Canadian Family Pharmacy services, you can buy wholesale and retail goods for beauty and health, as well as medications at the lowest prices. At the same time it is not necessary […]

Tips for Developing Organizational Skills in Children

Developing good organizational skills is a key ingredient for success in school and in life. Although some people by nature are more organized than others, anyone can put routines and systems in place to help a child become more organized. The Coordinated Campaign for Learning Disabilities has compiled a list of strategies that parents can […]

What is Hyperlexia?

By Julie Whaley Gordon’s favorite activity as a young child was spinning. He liked to spin things, and he liked to spin himself. We never went anywhere without a tote bag full of baby food jar lids. If he could spin the lids, he could happily occupy himself pretty well anywhere, as long as it […]